Saturday, April 27, 2013


People with disabilities are most often taught to comply  with the way those who are able bodied view them, especially professionals.  This can be a subtle form of manipulation that can be disguised as a favor.  An example is when you’re told, “I wouldn’t do this for everyone, but you’re special.”  I have been that “special exception”most of my life until I discovered there were certain obligations expected in return;  e.g. not holding professionals accountable and excusing blatant disregard for unprofessional conduct that jeopardizes the safety of others, disabled and able-bodied alike.                                                                                                                                                                            I have recently been asked  to “help” fix  the newly remodeled ladies room at the Nittany Lion Inn on the Penn State campus which was fully compliant with accessibility standards  before  being remodeled.  Now  it is an accessibility nightmare that holds much possibility for injury and embarrassment for those with disabilities as well as young children.      During the construction, I offered my advice, but was told it wasn’t needed.  Now the management wants me to volunteer my expertise that I have been paid for in three states  and one other country.  I have stated that I require financial compensation for my expertise just like everyone else.  After meeting with Penn State’s ADA Coordinator, who said he agreed, I am waiting for a response.
I’d like to know your opinion.

Tuesday, April 23, 2013


While I was writing what
I hoped would be a book, there were many in my community who supported me.  Few of them actually knew me, yet they believed in me.  There were those no longer living who had influence on me and, most of all, there were young poeople with cerebral plsy who I wanted to know me through my writing.  There were worried, frustrated mothers and fathers that I wantted to speak to of forgiveness, hope and  understanding.  Most of all, there were those so limited as to have no voice.  I wanted to speak fervently for them!
So, to help with expenses while I wrote, a bake sale was held.
5774 947497650044 4832337 n How I Began